Search results matching tag 'A note from Nili'

A note from Nili

carmen — Fri, 17 Jul 2009 15:36:25 GMT

Hi Carmen,

I’ve been meaning to write to you for some time. We found out that Collin can’t see out of his right eye. This summer he talked about his bad eye but Chris and I just thought he was being silly. He is my little joker of the family. He is always doing things to make us laugh only this time he was serious. We felt terrible when he went to Kindergarten and failed the eye test. We knew Collin wasn’t joking and sent him to a pediatric eye specialist. My sister in law has a step son that goes to the same place so she filled me in on how it works.

Collin’s has a stigmatism and what they call lazy eye. His vision is 20/80 in that eye. Why didn’t my pediatrician find this out earlier? We went to the check ups every year and they didn’t detect it. When our Dr did find out she was apologetic. Now she is doing the eye exam part of the check up herself instead of the nurse. Her son has the same diagnosis as Collin so she had been extremely helpful. He is a grown man now and his transformation was successful.

Well, it’s been 2 months since he’s been wearing his glasses and now he has to patch his eye for 4 hours a day. In the beginning he was frustrated with the patch so we tried the cloth one and then the sticky one. I felt like this shouldn’t be so hard for him. The next day was way worse. Now he was having headaches and crying. Thank god he didn’t have to do this at school or he would be having melt downs. We have started an incentive for wearing it but I know that he hates it. He tries to cheat and I feel bad for him. I know he has to wear it to get his brain to use that eye. What a struggle.

There was only one book about patching at the library and I was very disappointed. It is so nice to know that you are writing these books!

These kids need them and really so do we as parents!

Life is a bunch of lessons to learn. Collin and I will be learning them together. I will be strong for him.

Lots of Love,

Nili