Children's Eye Foundation Forum
These forums are meant to raise awareness for the need for early detection and treatment of eye disorders in children. This brand-new forum is facilitated by the Children's Eye Foundation.

Introduce Yourself!

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Ann Posted: Tue, Mar 10 2009 10:50 PM

I thought it might be nice to have a discussion topic for all of us to introduce ourselves...

I'll go ahead and start, then :)

I'm Ann, I'm a science librarian and mother of Zoe.  Zoe is 2 1/2 now, she's worn glasses since 14 months due to farsightedness and strabismus.  We noticed her eyes crossing around 9 months, took her in to an ophthalmologist who confirmed that she was farsighted, but not severely, so she recommended we take a wait and see approach.  Her eyes seemed ot straighten for a few months, but around 12 months they were crossing much more noticeably.  Back to the ophthalmologist who found that Zoe's farsightedness had worsened and we were off on our Great Big Glasses Adventure.

I scoured the web for a place to connect with other parents going through this.  I had no idea how to parent a young toddler with expensive, breakable equipment on her face.  No idea what to watch out for or how to handle all my worries.  I ended up starting the blog, little four eyes, which has since become a great way to connect with other parents and share stories and tips and tricks.  But it lacks a discussing forum, so this place is pretty great!

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My name is Jennifer. My daughter who is almost 8 months old has recently been diagnosed with bilateral congenital cataracts that require surgery. We have just started this process and it is scary. She has been given two surgery options and I am wondering if other parents have any experience with congenital cataracts.

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Posts 3

Hello!

Just wanted to introduce myself, for those that don't know me- I'm Linda, Braden is my son- you can read his story here.  I am so happy to be a part of this, and any forum regarding children's eyes, because I remember how I longed for such a place when Braden was first diagnosed.  I just wanted to be able to speak with other parents going through the same thing, and I couldn't find hardly any resources- It amazes how much has become available in just 1 short year!

I'm looking forward to getting to know everyone, and hopefully sharing and gaining information!

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Posts 6
Patty replied on Mon, Apr 20 2009 12:55 AM

Hi everyone! My name is Patty.  I'm 23 years old.  My son Joey, 3 1/2, was diagnosed with optic nerve hypoplasia in his left eye.  He has little to no vision in his left eye.  We are very fortunate that he hasnt had any other complications that many times coincide with this condition.  His most severe complication is light sensitivity, which seems to be controlled with transition lenses.  He is the most incredible child...honestly every parents dream.  He loves animals and wants to be a scuba diving shark and animal doctor.  He loves sharks and for 3 1/2 has a pretty impressive knowledge of the different kinds.  I am currently going to school to be a nurse.  I am a single mother, but fortunately, I have an imense support system through my family.  I am so happy though that I have found a place to be able to share my experiences as a mother to a vision impaired child.  I feel like sometimes, when I am venting or even just talking, that people feel as though they need to comfort or have some profound uplifting statement come out of there mouth lol.  

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